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You Just Got Diagnosed with Endometriosis: Now What?
The hope is one-day Endometriosis was taught in school’s health and sex education. Learning about the disease, and correct information about the disease is critical. So many Endometriosis warriors go so long without a name for their pain.
Since 10–20% of people, particularly people born with a uterus, suffer from Endometriosis, one would think it is well known. I bet you learned about diabetes long before you heard about Endometriosis, though the latter impact more individuals than diabetes or asthma. I didn’t learn the term Endometriosis until just before my 21st birthday, despite having symptoms severe enough to hospitalize me for over a decade at that point.
Endometriosis is one of the Top 20 Most Painful Conditions listed by the NHS, and is incredibly common, yet so little is known or discussed about the disease. Thanks to so many internet advocates, I learned the word through social media. Social media also provided me with far more information than a doctor ever has — and more factual information comes from social media, other warriors, and the internet than any doctor I have ever seen.
I wanted to make a list of the things I wish I learned about Endometriosis, both in school and from my doctors. There is still so much we do not know about Endometriosis, but what we do know is commonly left out of…
